Incredibly powerful story. The fact that questioning care protocols can lead to removal shows how much the system prioritizes institutional authority over patient advocacy. I worked with a family in a simlar situation where nuanced care decisions got misread as neglect, and its wild how quickly parental rights can be threatend.
Incredibly powerful story. The fact that questioning care protocols can lead to removal shows how much the system prioritizes institutional authority over patient advocacy. I worked with a family in a simlar situation where nuanced care decisions got misread as neglect, and its wild how quickly parental rights can be threatend.
When she said "one drop of blood," I wondered if it was a Theranos test. And the CEO of Theranos, of course, is in prison for fraud.
Really good interview, and my best wishes for this Mom and her daughter.
Wow. Thank you so much for sharing. What a strong mother. CF is hard enough I can’t imagine dealing with all the added stress. So wrong